Scurry to the kitchen. Scurry upstairs. Scampering away getting jobs done. I’ve been over doing it and now I’ve been told to stop and ‘pace’, by the CFS Clinic. But stopping is so hard; I want to get jobs done while I’m well. Hmm, it got me thinking. Slowing down, taking lots of breaks and… Continue reading I’ve found my inner Sloth
It’s almost Christmas and I just love it. Especially the Christmas shop. The music, the decorations, the dressed-up staff, the food stalls and the crowds. The atmosphere is alive. It is very draining though. The pressure of what to buy, what colour, what size, the cost, rushing out of the cold, wet weather into boiling… Continue reading 25 Christmas gift ideas for people with chronic illness
I often struggle to walk up the road. So how is it that I can suddenly hike up Helvellyn? Well, there’s a few obvious, to me, reasons why: 1) My body has endured pedalling mountain bikes up big hills every week for over 15 years, so I still have some strength from this. 2) Good… Continue reading How I climbed a mountain with M.E
Little did we know that we were going to be hit by icy cold showers and strong side winds. Oh wow, it turned bitterly cold. On went the hats and gloves, up went the hood and in poured the water…straight into my boots. Turns out my waterproof jacket wasn’t so waterproof either. I was soaked,… Continue reading Sponsored dog walk (4) -Helvellyn, part 2: We were prepared but we didn’t think this would actually happen.
The day had arrived! Forecast was a mix of showers and sun with a bitter -1 at the summit. After a short introduction to meet our fellow walkers, chat quickly turned to the weather and reassuringly everyone was well equipped with waterproofs, woollies, first aid kits, torches plus we had enough food to stay up… Continue reading Sponsored dog walk (4) – Helvellyn, part 1: We did it in what time?
AP had work but rather than miss out, we squeezed in a final walk one afternoon. With a height of 1100ft and just under 7 miles, a loop over Loughrigg Fell was our next goal. I tried to rest as much as I could during that day. I spread out my meals, so I was… Continue reading Sponsored dog walk (3) – It was like a horror film
With an elevation of 1543ft and a little over 6 miles, half that of Helvellyn, Wansfell Pike was our next target. It was a Saturday, and with all kids being back to school, we looked forward to a quiet, almost deserted, day out. Ha! Yeah right. We were less than 10 minutes out of Ambleside… Continue reading Sponsored dog walk (2) – This happened, and I got worried.
Over the past 3 years I’ve mostly walked on flat terrain while the dog plods slowly beside me. Occasionally I’ve managed longer walks with sit down breaks, but it comes with sacrificing a few days to recover. The chosen route up Helvellyn is 3600ft of ascending at a distance of 9.3 miles. That’s ten times… Continue reading Sponsored dog walk (1) – How I trained with M.E/CFS
Great news! I now have written diagnosis and I’ve been accepted into the CFS Clinic in Preston. Yay! Initially I was asked to describe my average day and given chance to ask any questions. Well, I had a world of questions bursting to come out and wondered how prepared the Nurse was for this flood… Continue reading Health update – CFS Clinic
Most days when I wake up, I get up mid-morning slowly making my way to the bathroom to wash and brush my teeth. I rest. I then get dressed. I rest. I brush my hair then head downstairs. I rest. Sometimes this works and I avoid a crash. When I do too much, my body… Continue reading A new challenge ahead