Great news! I now have written diagnosis and I’ve been accepted into the CFS Clinic in Preston. Yay! Initially I was asked to describe my average day and given chance to ask any questions. Well, I had a world of questions bursting to come out and wondered how prepared the Nurse was for this flood… Continue reading Health update – CFS Clinic
A new challenge ahead
Most days when I wake up, I get up mid-morning slowly making my way to the bathroom to wash and brush my teeth. I rest. I then get dressed. I rest. I brush my hair then head downstairs. I rest. Sometimes this works and I avoid a crash. When I do too much, my body… Continue reading A new challenge ahead
One year on
I’ve been blogging for 1 year now and I’m happy to say I’ve thoroughly enjoyed it. I thank you all for following me and really hope you gain from my experiences. It’s been a while since my last post so today is a brief catch up of my summer. A family break in Keswick meant… Continue reading One year on
The power of the Sunflower
I took the plunge and bought a Sunflower lanyard last week. I was against buying one initially. I mean, if I’m out and about it’s because I’m well enough to do what I need to do and then come home so who needs to know about my health? Well, then I had an awkward experience… Continue reading The power of the Sunflower
Benefit, what does that mean again?
You know, you don’t really know the extent to how horrifyingly complex and stressful being disabled actually is until you need to apply for help. I naïvely thought it must be easy to obtain funding when you can’t work. Surely, you can show a medical letter to the Job Centre and they can give you… Continue reading Benefit, what does that mean again?
Lunchtime laugh – on a roll
Yesterday without telling each other, we stacked our toilet rolls differently so the other would see when they next went to the loo. My partner (btw i’m now calling him AP, I’m tired of writing “my partner” lol)…AP started it, he’s such a child lol. I don’t know, maybe it’s a ‘you had to be… Continue reading Lunchtime laugh – on a roll
So today I had a consultation with the Neurologist who, due to my Lumber spine test results being clear, has ruled out MS for me and has verbally confirmed CFS/ME. I’m relieved I don’t have MS as I know it can be a nasty illness but I also know I now face an uncertain future.… Continue reading Health update
Caring for my carer
8pm Wednesday night my partner announced he was off to bed. Uh oh, he never goes to bed this early. Somethings wrong? Headache, temperature, bad stomach…yes, he’s sick! My mind races in a whirl of apprehension: I’ll have to cook; wash up; I’ll have to see he is ok; take extra trips upstairs with drinks… Continue reading Caring for my carer
Be nurtured by nature: outdoors or indoors.
Fatigue means I struggle with sensory overload. I often watch ‘mindful moment’ video clips. The soothing sounds of babbling brooks and tuneful song birds coupled with countryside views slowly rolling by. This connection to nature really helps me rest. Fascinated, I looked up some psychology and found some great ways nature helps us, outdoors and… Continue reading Be nurtured by nature: outdoors or indoors.
Happy Anniversary …not!
This month marks 2 years since I was labelled with chronic fatigue. So, what’s changed?… Well, I still wake up every day feeling like I should be going to bed. I’m endlessly exhausted and weak. I constantly yawn and breathe heavy when I move about. On a morning my brain craves for stimulation, mainly internet… Continue reading Happy Anniversary …not!