I’ve found my inner Sloth

Scurry to the kitchen. Scurry upstairs. Scampering away getting jobs done. I’ve been over doing it and now I’ve been told to stop and ‘pace’, by the CFS Clinic. But stopping is so hard; I want to get jobs done while I’m well. Hmm, it got me thinking. Slowing down, taking lots of breaks and… Continue reading I’ve found my inner Sloth

How I climbed a mountain with M.E

I often struggle to walk up the road. So how is it that I can suddenly hike up Helvellyn? Well, there’s a few obvious, to me, reasons why: 1) My body has endured pedalling mountain bikes up big hills every week for over 15 years, so I still have some strength from this. 2) Good… Continue reading How I climbed a mountain with M.E

Health update – CFS Clinic

Great news! I now have written diagnosis and I’ve been accepted into the CFS Clinic in Preston. Yay! Initially I was asked to describe my average day and given chance to ask any questions. Well, I had a world of questions bursting to come out and wondered how prepared the Nurse was for this flood… Continue reading Health update – CFS Clinic

The power of the Sunflower

I took the plunge and bought a Sunflower lanyard last week. I was against buying one initially. I mean, if I’m out and about it’s because I’m well enough to do what I need to do and then come home so who needs to know about my health? Well, then I had an awkward experience… Continue reading The power of the Sunflower

Caring for my carer

8pm Wednesday night my partner announced he was off to bed. Uh oh, he never goes to bed this early. Somethings wrong? Headache, temperature, bad stomach…yes, he’s sick! My mind races in a whirl of apprehension: I’ll have to cook; wash up; I’ll have to see he is ok; take extra trips upstairs with drinks… Continue reading Caring for my carer

10 Things that made my weekend away more crazy and less hazy.

It took 8 months (yes specifically 8, I checked the chat history) to plan and book a weekend away with friends. We all missed celebrating our 40th birthdays together during lockdown so it was well worth the wait, plus there were many deliberations among the 8 of us, and that kept us somewhat ‘entertained’ in… Continue reading 10 Things that made my weekend away more crazy and less hazy.