AP had work but rather than miss out, we squeezed in a final walk one afternoon. With a height of 1100ft and just under 7 miles, a loop over Loughrigg Fell was our next goal. I tried to rest as much as I could during that day. I spread out my meals, so I was… Continue reading Sponsored dog walk (3) – into the sunset
Over the past 3 years I’ve mostly walked on flat terrain while the dog plods slowly beside me. Occasionally I’ve managed longer walks with sit down breaks, but it comes with sacrificing a few days to recover. The chosen route up Helvellyn is 3600ft of ascending at a distance of 9.3 miles. That’s ten times… Continue reading Sponsored dog walk (1) – 1 month to go.
Great news! I now have written diagnosis and I’ve been accepted into the CFS Clinic in Preston. Yay! Initially I was asked to describe my average day and given chance to ask any questions. Well, I had a world of questions bursting to come out and wondered how prepared the Nurse was for this flood… Continue reading Health update – CFS Clinic
I took the plunge and bought a Sunflower lanyard last week. I was against buying one initially. I mean, if I’m out and about it’s because I’m well enough to do what I need to do and then come home so who needs to know about my health? Well, then I had an awkward experience… Continue reading The power of the Sunflower
Yesterday without telling each other, we stacked our toilet rolls differently so the other would see when they next went to the loo. My partner (btw i’m now calling him AP, I’m tired of writing “my partner” lol)…AP started it, he’s such a child lol. I don’t know, maybe it’s a ‘you had to be… Continue reading Lunchtime laugh – on a roll
This month marks 2 years since I was labelled with chronic fatigue. So, what’s changed?… Well, I still wake up every day feeling like I should be going to bed. I’m endlessly exhausted and weak. I constantly yawn and breathe heavy when I move about. On a morning my brain craves for stimulation, mainly internet… Continue reading Happy Anniversary …not!
Well I’ve had a rough week. Monday after the Lumber Puncture test I sat up in bed and got the worst headache I’ve ever felt. It was like being hit over the head by a glass bottle. Then came the queasiness. Wow I felt ill. I was pretty much horizontal most of the week as… Continue reading Health Update
I had a Lumber Puncture today. This is where they put a needle in your spine and drain out some cerebro-spinal fluid (CSF). It is the last test before they can 100% rule out MS. The procedure was fine, the only discomfort was the needle for the anesthetic going in but that only lasted a… Continue reading Health Update
When my energy runs out, the effect on my brain is immense. I refer to ‘my brain’ in third person as I feel this symptom is out of my control. My brain starts to error. I become restless. I try to relax but my brain searches for something to dig into: a Sudoku; a crime… Continue reading Tired but wired
I’ve been pretty wiped out this month. It took a full week of cleaning and tidying to prep for my mother’s 70th birthday. The family all had a great time, but it took its toll. It was then the dreaded ladies’ week and this time I just couldn’t get moving. My brain malfunctioned; I didn’t… Continue reading Health update