This month was our a family trip to Bakewell in Derbyshire, a small market town with shops, cafes and good choice of pubs set in the most gorgeous countryside. I usually need a holiday from my holiday but this time was different, it was much more restful. So here’s my tips for an easier time… Continue reading Happy Holidays
As if having the widely misunderstood illness of ME/CFS isn’t bad enough, add in Raynaud’s Phenomenon, and life can get trickier. I was 19 when diagnosed with Raynaud’s. Seeing the GP about another issue, he noticed my two-toned hands (white on the backs with bright red fingers) that’s Raynaud’s disease, he announced. He made a quick… Continue reading Another phenomenon
Month of Mondays
I hit down to earth with a mighty bang after Christmas and New Year. Staying with family, catching up with friends, the drinks, the food, the fun. I had a great time. Then I came home and it was deathly quiet. Christmas decorations being down, the house was bare and empty, I felt empty. January… Continue reading Month of Mondays
I’ve found my inner Sloth
Scurry to the kitchen. Scurry upstairs. Scampering away getting jobs done. I’ve been over doing it and now I’ve been told to stop and ‘pace’, by the CFS Clinic. But stopping is so hard; I want to get jobs done while I’m well. Hmm, it got me thinking. Slowing down, taking lots of breaks and… Continue reading I’ve found my inner Sloth
25 Christmas gift ideas for people with chronic illness
It’s almost Christmas and I just love it. Especially the Christmas shop. The music, the decorations, the dressed-up staff, the food stalls and the crowds. The atmosphere is alive. It is very draining though. The pressure of what to buy, what colour, what size, the cost, rushing out of the cold, wet weather into boiling… Continue reading 25 Christmas gift ideas for people with chronic illness
Sponsored dog walk (4) -Helvellyn, part 2: We were prepared but we didn’t think this would actually happen.
Little did we know that we were going to be hit by icy cold showers and strong side winds. Oh wow, it turned bitterly cold. On went the hats and gloves, up went the hood and in poured the water…straight into my boots. Turns out my waterproof jacket wasn’t so waterproof either. I was soaked,… Continue reading Sponsored dog walk (4) -Helvellyn, part 2: We were prepared but we didn’t think this would actually happen.
Sponsored dog walk (4) – Helvellyn, part 1: We did it in what time?
The day had arrived! Forecast was a mix of showers and sun with a bitter -1 at the summit. After a short introduction to meet our fellow walkers, chat quickly turned to the weather and reassuringly everyone was well equipped with waterproofs, woollies, first aid kits, torches plus we had enough food to stay up… Continue reading Sponsored dog walk (4) – Helvellyn, part 1: We did it in what time?
Sponsored dog walk (3) – It was like a horror film
AP had work but rather than miss out, we squeezed in a final walk one afternoon. With a height of 1100ft and just under 7 miles, a loop over Loughrigg Fell was our next goal. I tried to rest as much as I could during that day. I spread out my meals, so I was… Continue reading Sponsored dog walk (3) – It was like a horror film
Sponsored dog walk (1) – How I trained with M.E/CFS
Over the past 3 years I’ve mostly walked on flat terrain while the dog plods slowly beside me. Occasionally I’ve managed longer walks with sit down breaks, but it comes with sacrificing a few days to recover. The chosen route up Helvellyn is 3600ft of ascending at a distance of 9.3 miles. That’s ten times… Continue reading Sponsored dog walk (1) – How I trained with M.E/CFS
Health update – CFS Clinic
Great news! I now have written diagnosis and I’ve been accepted into the CFS Clinic in Preston. Yay! Initially I was asked to describe my average day and given chance to ask any questions. Well, I had a world of questions bursting to come out and wondered how prepared the Nurse was for this flood… Continue reading Health update – CFS Clinic