AP had work but rather than miss out, we squeezed in a final walk one afternoon. With a height of 1100ft and just under 7 miles, a loop over Loughrigg Fell was our next goal. I tried to rest as much as I could during that day. I spread out my meals, so I was… Continue reading Sponsored dog walk (3) – into the sunset
With an elevation of 1543ft and a little over 6 miles, half that of Helvellyn, Wansfell Pike was our next target. It was a Saturday, and with all kids being back to school, we looked forward to a quiet, almost deserted, day out. Ha! Yeah right. We were less than 10 minutes out of Ambleside… Continue reading Sponsored dog walk (2) – the only way is up…and across.
Over the past 3 years I’ve mostly walked on flat terrain while the dog plods slowly beside me. Occasionally I’ve managed longer walks with sit down breaks, but it comes with sacrificing a few days to recover. The chosen route up Helvellyn is 3600ft of ascending at a distance of 9.3 miles. That’s ten times… Continue reading Sponsored dog walk (1) – 1 month to go.
Great news! I now have written diagnosis and I’ve been accepted into the CFS Clinic in Preston. Yay! Initially I was asked to describe my average day and given chance to ask any questions. Well, I had a world of questions bursting to come out and wondered how prepared the Nurse was for this flood… Continue reading Health update – CFS Clinic
Most days when I wake up, I get up mid-morning slowly making my way to the bathroom to wash and brush my teeth. I rest. I then get dressed. I rest. I brush my hair then head downstairs. I rest. Sometimes this works and I avoid a crash. When I do too much, my body… Continue reading A new challenge ahead
I’ve been blogging for 1 year now and I’m happy to say I’ve thoroughly enjoyed it. I thank you all for following me and really hope you gain from my experiences. It’s been a while since my last post so today is a brief catch up of my summer. A family break in Keswick meant… Continue reading One year on
I took the plunge and bought a Sunflower lanyard last week. I was against buying one initially. I mean, if I’m out and about it’s because I’m well enough to do what I need to do and then come home so who needs to know about my health? Well, then I had an awkward experience… Continue reading The power of the Sunflower
You know, you don’t really know the extent to how horrifyingly complex and stressful being disabled actually is until you need to apply for help. I naïvely thought it must be easy to obtain funding when you can’t work. Surely, you can show a medical letter to the Job Centre and they can give you… Continue reading Benefit, what does that mean again?
Yesterday without telling each other, we stacked our toilet rolls differently so the other would see when they next went to the loo. My partner (btw i’m now calling him AP, I’m tired of writing “my partner” lol)…AP started it, he’s such a child lol. I don’t know, maybe it’s a ‘you had to be… Continue reading Lunchtime laugh – on a roll
So today I had a consultation with the Neurologist who, due to my Lumber spine test results being clear, has ruled out MS for me and has verbally confirmed CFS/ME. I’m relieved I don’t have MS as I know it can be a nasty illness but I also know I now face an uncertain future.… Continue reading Health update